World Hemophilia Day is celebrated on April 17th every year. This day is recognized worldwide to increase awareness of hemophilia and other inherited bleeding disorders. This is an important endeavor since greater awareness leads to improved diagnosis and care access for the millions of people who still lack access to treatment. The World Federation of Hemophilia initially established World Hemophilia Day in 1989, selecting April 17 as the day to unite the community in observance of Frank Schnabel, the organization’s founder. Through its GAP, twinning programs, and cornerstone project, the World Federation of Hemophilia, with the help of global volunteers, accomplishes amazing work with impoverished nations.
Hemophilia is a rare genetic condition that affects the blood’s ability to clot. This disorder results in persistent bleeding after an injury or surgery. Severe internal bleeding can cause organ damage and even death. It’s important to spread the word about this condition and make sure those affected get the right treatment. Haemophilia is an uncommon severe hereditary hemorrhagic illness that results in improper blood coagulation due to malfunctions of the factors VIII and IX protein, which are necessary for blood clotting and coagulation. Although people of all races and ethnicities can be diagnosed with hemophilia, men are more likely to be affected because the ailment is connected to the X chromosome.
Dr. Sheetu Singh renowned for her pioneering work in the field of blood disorders, unveiled a comprehensive guide aimed at raising awareness and providing crucial support for individuals affected by hemophilia. This guide is an excellent resource that provides comprehensive insights into the most recent developments in treatment alternatives, preventive measures, and effective condition management techniques. Through her dedicated efforts, she not only sheds light on the challenges faced by those living with hemophilia but also instills hope by highlighting the progress being made towards a more inclusive and supportive society.
The Theme For World Hemophilia Day 2024
The Theme for World Hemophilia Day 2024 is “Equitable Access For All: Recognizing All Bleeding Disorders”. The decision was made to educate the public about the illness and the importance of paying proper attention to this grave health concern. The goal of the World Federation of Hemophilia is to provide better care and treatment for all individuals with hemophilia. Source URL.
Significance of World Hemophilia Day
Hemophilia is an inherited genetic disorder. It prevents the body from forming blood clots, thus those who have hemophilia take a very long time to stop bleeding. On World Hemophilia Day, numerous iconic structures throughout the world light up red to raise awareness and provide support for those who suffer from inherited blood diseases. This is an important effort since greater awareness leads to improved diagnosis and care access for the millions of people who still lack access to treatment. The importance of educating hemophilia patients and the general public about bleeding disorders.
- Raising Awareness: Hemophilia is a condition that many individuals are unaware of, which can result in a delayed diagnosis and more significant issues. World Hemophilia Day helps spread the word to prevent these issues.
- Funding Research: Additionally, the day aids in fundraising for hemophilia research. This research contributes to our understanding of the condition’s management and improves the lives of people who experience it.
- Supporting People with Hemophilia: Hemophilia is connected by World Hemophilia Day, fostering a community of support. It also enables the rest of the Globe to demonstrate their concern and support for people who are afflicted with this illness.
History of World Hemophilia Day
Hemophilia is a long-standing condition that was originally identified in the tenth century when individuals, particularly men, began to bleed profusely from minor wounds. Back then, it was called Abulcasis. However, due to the lack of modern technological advances, we were unable to comprehend the sickness completely. It’s likely that several well-known historical people, such as members of royal families, suffered from hemophilia and were treated with aspirin, which made their condition worse.
When Philadelphia physician Dr. John Conrad Otto began examining individuals who bled frequently in 1803, he discovered that the illness was inherited by sons from their mothers. In 1926, a Finnish doctor named Erik von Willebrand described a similar bleeding illness affecting both men and women. They named it Von Willebrand disease after him. Researchers in Sweden discovered in 1957 that the illness is brought on by low Von Willebrand factor levels. Officially, hemophilia was divided into two groups in 1937: A and B. Source URL..
Managing and Treating Hemophilia
Hemophiliacs can control their condition, even though there is currently no treatment, by receiving regular injections of clotting factors to stop sudden bleeding. World Hemophilia Day was created in 1989 by the World Federation of Hemophilia to remember the organization’s founder, Frank Schnabel, on his birthday, April 17. The main goals of the day are to raise awareness of bleeding disorders, educate people about them, and collect funds to support individuals who cannot afford treatment.
Importance of World Hemophilia Day
It was estimated in 2000 that 4 lakh people globally, or approximately 1 in 10,000 live births, suffered from this illness, and only 25% of those affected had access to appropriate therapy. In 2019, however, a meta-analysis showed that the number of men with the inherited bleeding condition is far higher, at 11.25 lakh.
Merely 15% of the world’s population has access to efficient hemophilia therapy, even in high-income countries. In low- and middle-income nations, high rates of mortality and morbidity are caused by inadequate resources for diagnosis and treatment. In celebration of its 31st anniversary, World Haemophilia Day will be held this year with events aimed at enticing the public to assist legislators and the government in improving the care, control, and prevention of bleeding in those with bleeding disorders. Source URL…
Why Do We Celebrate World Hemophilia Day?
The World Hemophilia Day is celebrated to:
- Raise awareness of other inherited bleeding illnesses, such as hemophilia.
- Provide guidelines for the support of individuals with hemophilia that can be modified by various groups from various places.
- Better diagnostic and healthcare access should be made available to hemophiliacs who are untreated.
How to Cure Hemophilia?
There is no cure for hemophilia as it is a genetic disorder. On the other hand, stopping the bleeding helps manage bleeding when the clotting factor is replenished. It is done by injecting clotting factors into the veins. The therapy product can be used as preventive care, which prevents bleeding by regularly infusing the clotting factors, or as episodic care, which stops bleeding during an incident. Source URL….
17th April 2024 Special Day
April 17th, World Hemophilia Day, is a significant date for patient advocates to show hope by celebrating accomplishments and aiming high for a future free from genetic bleeding illness. As the day draws near, worldwide campaign groups join with the same goal of extending support systems and raising awareness for people living with symptoms daily. The early arrival of 2024’s special day will present an ideal chance to reevaluate health objectives, set ambitious treatment aims, and renew hope for the day when gene therapies can permanently stop abnormal bleeding episodes. This event offers an opportunity to spark global momentum for good change by uniting all relevant parties to enhance the quality of life for hemophilia sufferers until a permanent cure is discovered. Source URL…..
FAQs
What is World Hemophilia Day?
World Hemophilia Day is observed annually on April 17th to increase awareness of hemophilia and other inherited bleeding disorders. This day serves as an opportunity to foster understanding in the general public and among health professionals about the needs of those living with these conditions and the importance of access to care and treatment.
What is hemophilia?
Hemophilia is a genetic disorder that impairs the body’s ability to make blood clots, a process needed to stop bleeding. This condition can lead to spontaneous bleeding as well as bleeding following injuries or surgery. Hemophilia is usually inherited and affects men more than women, though carriers of the disorder can also be female.
What is the theme for World Hemophilia Day 2024?
The Theme for World Hemophilia Day 2024 is “Equitable Access For All: Recognizing All Bleeding Disorders”.
What is the importance of World Hemophilia Day?
the importance of spreading knowledge about bleeding disorders among the general public and hemophiliac patients. The day will also emphasize the importance of proper hemophilia care and treatment.
Are there different types of hemophilia?
Yes, the most common types of hemophilia are Hemophilia A and Hemophilia B. A blood-clotting protein called factor VIII is deficient in hemophilia A or classic hemophilia. The less common hemophilia B is caused by a factor IX deficiency. The symptoms of both types are similar, but they require different treatments.
How is Hemophilia treated?
The usual course of treatment is administering clotting factor concentrates regularly to replace the absent blood clotting factor. The creation of longer-lasting factor products and gene therapy, which offers the possibility a long-term treatment for some patients, is a result of medical research advancements.
